Things are starting to get real.
For a while, I had the freedom to think about a holistic approach to dealing with my cancer diagnosis, as well as a mainstream medical approach.
This freedom has slowly disappeared since the doctors have made it clear that if I go holistic which I’m welcome to do, I might get kicked out of the chemotherapy program. That all revolves around liver enzymes. When chemotherapy is working liver enzymes go down. However, when using a holistic medicine approach, even when it’s working, sometimes liver enzymes go up. So when a doctor is doing chemo at the same time that I’m doing holistic approaches they really can’t tell whether the chemo is working or not.
We’ve been trying to get a hold of a drug called Keytruda. It’s very expensive ($32,000 per treatment).
Very often Keytruda is not covered by insurance. Our dear friend Deedee (One of the stars of the great 1970s cult film “The Warriors” did a lot of research on our behalf and found out there may be a program that we can go into where we can be part of a study. Deedee called the company (Merck) and they called us up on Friday. We will call them on Monday to see if there’s some way we can get into this program.
I also had a humbling wake-up call though it doesn’t bother me much, and I’m not embarrassed to share it with you.
Every time I fart, my underwear gets a brown strain.
I spent my whole life farting. I like when my friends fart and laughing about who cut the cheese?
But when you fart, your underwear is not supposed to get brown
My wife, sweet Lilia, and I quarreled about this. She insisted that she needed to get me special diapers to wear. The ones that are designed for brown farts. I made it clear I wasn’t going to do it.
Talk about going downhill with Cancer.
My resistance lasted about an hour and I folded. She takes such good care of me. Now I’m wearing special diapers for adults. I’ve been watching those Depends commercials for years.
I didn’t think I’d be one of those people but here I am.
My wife is a saint she never complains. She wheels me around in the wheelchair. We go out for breakfast in the morning, she washes the laundry — that includes the stains from my brown farts.
Sometimes Lilia and I talk about our life together. In case I don’t survive this, we had a great life We traveled the world, saw so many things, loved each other. We had and have great friends. You couldn’t have much of a better life than the life that we’ve had together.
I’m not looking forward to dying, but what a great life!
Lilia always reminds me to be in the world but not of the world.
Good advice.
On the bright side, I love the fact that I know so many people who are cancer survivors, and who have friends, husbands, or cousins who are cancer survivors.
Well, we’ll have to see what happens, won’t we?
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Hi,
I hope you’re doing well. I was recently diagnosed with Stage 4 Cancer and I need your help.
I started a fundraiser on GoFundMe and it would mean so much if you could take a look at it. Any help, like donating or sharing, gets me closer to my goal. Thank you in advance for your kindness and support.
Lewis
Thanks so much Irma. Bless you. - Lewis
Thank you Lilia, thank you Deedee. Pray for you and yours every day Lewis.